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Consumer informatics and digital health : solutions for health and health care
- Available as
- Online
Details
- Creator
- Margo Edmunds, Christopher Hass, Erin Holve, editors
- Format
- Books
- Language
- English
- Publication
-
- Cham, Switzerland : Springer, 2019
- Physical Details
-
- 1 online resource (xix, 408 pages) : illustrations (some color)
- ISBNs
- 9783319969060, 9783319969046, 9783319969053, 3319969064
- OCLC
- on1083523064
- Includes bibliographical references and index.
- ForewordSusanna Fox, Chief Technology Officer, US Department of Healthand Human Services Paul Tang, CMIO, Palo Alto Medical Foundation SECTION I: Domains of Consumer Informatics and Mobile Health 1. Promoting Consumer Engagement in Health and Health Care Margo Edmunds, VP for Evidence Generation and Translation, AcademyHealth The opening chapter will define consumer informatics, describe the history of different branches of the field (e.g., virtual visits/telehealth, mobile health, and the e-patient movement), and provide a framework for evaluating and disseminating evidence about ways to improve the consumer experience and change health behaviors. 2. Increasing Consumer Engagement Through Social Media, Crowd-sourcing, and BeyondMandi Bishop, Health Plan Analytics Innovation Practice Lead, Dell This chapter will review the state of the art and new directions for online tools to engage consumers in health and health care, focusing on social media platforms, consumer-facing web portals, and emerging technologies from the quantified self movement. 3. The Global Connected Health Ecosystem Jody Ranck, Gigaom Research This chapter will review the development, state of the art, and new directions for mobile devices in global health. 4. Bridging the Gaps: New Approaches to Address Population Health Ned Calonge, President and CEO, The Colorado Trust This chapter will describe innovations in the use of online and mobile technologies to promote community health and health equity with diverse populations. SECTION II: A New Environment for Development and Design5. User-Centered Design Christopher Hass, SVP, Experience Design, Mad*Pow This chapter will lay out the fundamentals of user experience (UX) and user-centered design for the Web, including accessibility for people with disabilities. Case examples will be provided. 6. Usability and Utility Testing Christopher Hass, SVP, Experience Design, Mad*Pow Building on Chapter 5, this chapter will provide practical guidance on applying the principles of user-centered design to ensure the quality of consumer-facing products and services. 7. Motivational Design and Persuasive Technology for Consumer Learning Dustin Ditommaso, SVP of Behavior Change Design, Mad*Pow Motivational design is an approach to online learning that can be used to increase consumer engagement with content. Persuasive technology uses behavioral science to design systems that promote consumer behavior change similar to personal health coaching, and taking into account both health and technology literacy. This chapter will provide practical advice on using these approaches in the development of health content for consumers. 8. New Directions and Techniques for "Big Data": The Promises and Risks John Mattison, CMIO and Assistant Medical Director, Kaiser Permanente Southern California (by interview) As used in this chapter, big data refers to the storage and analysis of sets of data, including health data, that are too large to process using typical software and analytics processes. As a source for discovery and breakthroughs in health care treatment, big data holds promise but it also presents risks and uncertainties about consumer privacy and security. This chapter will separate out the reality and hype and provide a technical reference for the chapters in Section IV on privacy and security. SECTION III: Content Development and Consumer-Generated Data9. Addressing Information Overload: Knowledge Management to Improve Person-Centered Care Erin Holve, Senior Director, AcademyHealth With the explosion of consumer-relevant and consumer-generated health data, this chapter will describe ways to help consumers make the best use of information from a wide variety of sources. 10. Content Strategy: Writing for Health Consumers on the Web Carolyn Petersen, Senior Editor, mayoclinic.org Seven out of ten visits to the Web are part of consumer searches for health information, but the quality, appropriateness, and accessibility of the information varies widely across different sites. This chapter will review evidence on the value of web information in consumer-driven health care and describe best practices for developing consumer-friendly web content. 11. Visualization for Comprehension, Engagement, and Healthcare Improvement Suzanne Bakken, Professor of Biomedical Informatics and Alumni Professor, Columbia University School of Nursing This chapter will describe innovative methods to provide consumer-friendly content through visual means. It will be based on the author's work with electronic health records and self-reported information from residents of low-income communities in Northern Manhattan, New York City. 12. Consumer-Generated Data and Health Information Exchange Paul Fu, Jr., CMIO Harbor-UCLA Medical Center As the nation pursues the goal of population health, it is important for personal health information and consumer-generated data to be standardized, structured, and aggregated for health planning purposes by local health agencies. This chapter will address some of the important technical and governance issues involved in integrating individual health data into health information exchanges at the local and regional levels. 13. Engaging Consumers in Culturally Diverse Communities Joy Davis, Kaiser Permanente Institute for Health Policy This chapter will provide examples of emerging best practices in culturally competent consumer engagement in a variety of clinical and community settings. 14. Aging in Place Charlotte Weaver, Board Director, VitalSims, LLC Many adults prefer to remain in their own homes as they get older. Technology-enabled supports for older adults and their caregivers are becoming increasingly important with the growing number of people managing chronic health conditions through self-care and home-based care. This chapter will review the key technologies, challenges, and opportunities for remotely generated patient data to improve the health of older adults. SECTION IV: POLICY AND REGULATORY ISSUES15. How Standards and Interoperability Support Consumers Kevin Larsen, Medical Director of Meaningful Use, Office of the National Coordinator for Health IT, HHS Including consumers in the free flow of health information is a policy priority, but it will require significant changes in culture and infrastructure. This chapter will provide a consumer-friendly primer on how federal requirements for meaningful use of health data are evolving to improve consumer access to personal health information. 16. The Role of HIPAA in Consumer Health Informatics Ann Waldo, Wittie Letsche & Waldo LLP and Doug Peddicord, Washington Health Strategies Group The Privacy Rule that governs health information transactions has not kept pace with consumer technology and the Web, and many providers believe HIPAA restricts data sharing with consumers and patients. This chapter provides a legal perspective on how HIPAA should be rewritten to allow the free flow of health information to consumers. 17. Building Consumer Trust Through Information Security Bradley Malin, Health Information Privacy Laboratory, Vanderbilt University, and Fred Trotter, Co-author, Hacking Healthcare (by interview) Some consumers, such as those in the quantified self movement, openly share their personal health data, while others want to maintain personal privacy or are concerned about data breaches. This chapter provides some innovative perspectives on privacy technology that enables trust. 18. Using Consent to Improve Informedness John Wilbanks, Director of Consent to Research (CtR) Project at Sage Bionetworks (by interview) This chapter will address ethical issues in consumer informatics and online content, including quality assurance, privacy, and security concerns; consent and governance; and the important role consumer information plays in shared decision-making. If privacy concerns have slowed the progress of research, new approaches, such as a pool of freely available health and genomic data, could accelerate innovation. This chapter will describe the range of ethical perspectives on data sharing and propose a new approach. 19. Consumer Expectations About Privacy Shane Harris, Senior Intelligence and National Security Correspondent, The Daily Beast Health care systems have lagged behind other industry sectors in developing secure information-sharing strategies