Website Search
Find information on spaces, staff, and services.
Find information on spaces, staff, and services.
| LEADER | 03992ngm a2200625Ia 4500 | |
| 001 | 9911189863302121 | |
| 005 | 20130303151047.0 | |
| 006 | m o c | |
| 007 | vz|czazuu | |
| 007 | cr|cna | |
| 008 | 130301s2012||||nyu053||||||||o|||vleng|d | |
| 028 | 40 | $a50126$bFilms Media Group |
| 035 | $a100050126 | |
| 035 | $a(OCoLC)828745833 | |
| 035 | $a(FOD)100050126 | |
| 040 | $aAzPhAEM | |
| 041 | 0_ | $aeng$jeng |
| 245 | 00 | $aRett :$bThere Is Hope - Case Studies, Family Portraits, and the Search for a Cure /$cREM Entertainment. |
| 246 | 3_ | $aCase Studies, Family Portraits, and the Search for a Cure |
| 246 | 3_ | $aThere Is Hope - Case Studies, Family Portraits, and the Search for a Cure |
| 260 | 3_ | $aNew York, N.Y. :$bFilms Media Group,$c[2012], c2012. |
| 300 | $a1 streaming video file (53 min.) :$bsd., col. | |
| 336 | $atwo-dimensional moving image$btdi$2rdacontent | |
| 337 | $avideo$bv$2rdamedia | |
| 337 | $acomputer$bc$2rdamedia | |
| 338 | $aother$bvz$2rdacarrier | |
| 338 | $aonline resource$bcr$2rdacarrier | |
| 344 | $adigital$2rda | |
| 347 | $adata file$2rda | |
| 506 | $aAccess requires authentication through Films on Demand. | |
| 538 | $aMode of access: Internet. | |
| 538 | $aSystem requirements: FOD playback platform. | |
| 500 | $aEncoded with permission for digital streaming by Films Media Group on October 07, 2012. | |
| 500 | $aFilms on Demand is distributed by Films Media Group for Films for the Humanities & Sciences, Cambridge Educational, Meridian Education, and Shopware. | |
| 505 | 0_ | $aUndiagnosed Rett Syndrome (3:31) -- Symptoms of Rett Syndrome (4:12) -- Family Influenced by Rett Syndrome (4:41) -- Feeding Tube (4:14) -- Severity of Rett Syndrome (4:40) -- Caregiving for Rett Syndrome Children (2:09) -- One-Gene Disorder (5:02) -- Parental Concern (2:56) -- Good Days and Frustrations (6:44) -- Rett Syndrome Research (3:01) -- Rett Syndrome Reversal (4:57) -- Need for Funding (2:01) -- What Parents Learn from Rett Children (2:58) -- Credits: Rett: There Is Hope - Case Studies, Family Portraits, and the Search for a Cure (1:55) |
| 520 | $aStriking mostly girls under the age of 18 months, Rett syndrome is one of the most debilitating and frightening disorders on the autism spectrum. Its symptoms include seizures, recurrent infections, developmental delay, and absent to minimal speech. Its victims usually live into adulthood and require round-the-clock care. But increased attention to Rett has intensified research efforts as well as a greater sense of community and support among those affected by the disorder. This program focuses on families coping with Rett's daily realities - the constant stress of caregiving, the emotional impact on parents, and the perspectives on health and happiness that emerge when one realizes what a Rett patient must go through.The film also follows the work of scientists searching for the genetic key to a Rett cure. Interview subjects include Monica Coenraads, executive director of the Rett Syndrome Research Trust; Dr. Adrian Bird of the University of Edinburgh’s Centre for Cell Biology; and Dr. Huda Zoghbi of Baylor College of Medicine. | |
| 521 | 2_ | $a11 & up. |
| 588 | $aTitle from distributor's description. | |
| 546 | $aClosed-captioned. | |
| 650 | _0 | $aBrain$xPhysiology. |
| 650 | _0 | $aDisabilities. |
| 650 | _0 | $aMedicine$xResearch. |
| 650 | _0 | $aNervous system$xDiseases. |
| 650 | _0 | $aNervous system. |
| 650 | _0 | $aPeople with disabilities. |
| 650 | _0 | $aRett syndrome. |
| 655 | _7 | $aVideo recordings for the hearing impaired$2lcgft |
| 655 | _0 | $aEducational films. |
| 655 | _0 | $aInternet videos. |
| 655 | _7 | $aVideorecording.$2local |
| 710 | 2_ | $aFilms Media Group, $efilm distributor. |
| 710 | 2_ | $aFilms for the Humanities & Sciences (Firm) |
| 710 | 2_ | $aREM Entertainment. |
| 856 | 40 | $zPart of the Films on Demand collection.$uhttp://fod.infobase.com/PortalPlaylists.aspx?wID=240117&xtid=50126 |