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End-of-life care for children and adults with intellectual and developmental disabilities
- Available as
- Physical
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- Creator
- edited by Sandra L. Friedman and David T. Helm ; foreword by Allen C. Crocker
- Format
- Books
- Language
- English
- Contributors
- Publication
-
- Washington, DC : American Association on Intellectual and Developmental Disabilities, [2010]
- ©2010
- Physical Details
-
- xix, 369 pages : illustrations ; 27 cm
- ISBNs
- 9781935304074, 1935304070
- OCLC
- ocn502393623
- Includes bibliographical references and index.
- Machine generated contents note: pt. I HISTORICAL PERSPECTIVE -- 1.Constructing a "Good Death": Historical and Social Frameworks / Sandra L. Friedman -- 2.End-of-Life Policies and Practices / Angela King -- 3.Ethical Foundations and Legal Issues / Maureen van Stone -- pt. II MEDICAL CONDITIONS AND MANAGEMENT -- 4.Complex Medical Problems Affecting Life and Life Span in Children / Sandra L. Friedman -- 5.Medical Conditions in Adults Near the End of Life / Marc T. Emmerich -- 6.Medical Treatment and Management at the End of Life / Julie Hauer -- 7.Nutrition Issues in End-of-Life Care / Vanessa Ludlow -- pt. III CURRENT CONTROVERSIES AND ETHICAL DILEMMAS -- 8.Practical Guide to Health Care Decision Making / Betsy B. Johnson -- 9.Do-Not-Resuscitate Orders and Redirection of Treatment / Christine Mitchell -- 10.Ethical Issues in the Withdrawal of Support: Charting a Course Between Scylla and Charybdis / John J. Hardt -- 11.Forgoing Nutrition in Infants and Children With Intellectual Disabilities / Robert M. Veatch -- 12.The Persistent Vegetative State / David L. Coulter -- pt. IV SOCIAL, EMOTIONAL, AND SPIRITUAL CONSIDERATIONS -- 13.Applying the Dignity-Conserving Model / Karen D. Schwartz -- 14.End of Life Through a Cultural Lens / Patricia Maloof -- 15.Spirituality Issues and Strategies: Crisis and Opportunity / William Gaventa -- 16.Struggling With Grief and Loss / Kenneth J. Doka -- pt. V SUPPORTS AND RESOURCES -- 17.Use of Person-Centered Planning for End-of-Life Decision Making / Leigh Ann C. Kingsbury -- 18.Supports and Resources for Families of Children With Special Health Care Needs / So Yun Kwan -- 19.Supports and Resources for Adults / Patricia Conway -- 20.Palliative Care and Pain Management: Resources for Direct Care Providers / Patricia N. Rissmiller
Subjects
- Terminal care.
- People with mental disabilities -- Care.
- Developmentally disabled -- Care.
- Persons with Mental Disabilities.
Medical Subject Heading
- Terminal Care -- ethics.
Medical Subject Heading
- Adult.
Medical Subject Heading
- Bioethical Issues.
Medical Subject Heading
- Child.
Medical Subject Heading