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New challenges for biobanks : ethics, law, and governance
- Available as
- Physical
Details
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- Creator
- Kris Dierickx, Pascal Borry (eds.)
- Format
- Books
- Language
- English
- Contributors
- Publication
-
- Antwerp : Intersentia ; Portland, OR : Distribution for the USA and Canada, International Specialized Book Services, [2009]
- ©2009
- Physical Details
-
- xx, 277 pages : illustrations ; 24 cm
- ISBNs
- 9050959741, 9789050959742
- OCLC
- ocn466359514
- Papers presented at a conference held in Leuven on May 18-20, 2009.
- Includes bibliographical references.
- Biobanks, networks and networks of networks / Darren Shickle and Marcus Griffin -- Evolution in research biobanks and its legal consequences / Geraldine Fobelets and Herman Nys -- Assessing values to set policies for consent, storage, and use of tissue and information in biobanks / Lori Andrews -- Between individualism and solidarity : biobanking in Sweden / Katharina Beier -- Culture, identity and genomic research / Kerry Bowman and Maxwell J. Smith -- Children, biobanks and consent / Kristen Hens and Kris Dierickx -- From medical biobanks to research tools : re-use of samples : governance and human rights / Emmanuelle Rial-Sebbag, Anne-Marie Duguet and Anne Cambon-Thomsen -- Protection of non-welfare interests in the research uses of archived biological samples / Tom Tomlinson -- Privacy, consent and governance / Lisa Austin and Trudo Lemmens -- From private to public? : legal aspects of the right to privacy and ownership in the regulation of biobanks / Judit Sándor -- From idealism to realism : commercial ventures in publicly funded biobanks / Kristin Solum Steinsbekk, Berge Solberg and Bjørn Kåre Myskja -- Private biobanks in Italy : an overview of the legal framework / Massimo D'Auria and Alessandro Spina -- Genetic databases in the forensic context : a European perspective / Petra Bárd -- Liberty and/or security : the main ethical question regarding forensic DNA databases / Annemie Patyn and Kris Dierickx -- Forensic DNA analysis and biobanking in France / Anne-Marie Duguet ... [et al.] -- DNA databases and biobanks : the Portuguese legal and ethical framework / Cíntia Águas ... [et al.] -- Victorian cancer biobank : a consortium successfully united through sound planning, governance and managment / M. Anne Thompson -- The UK Biobank Ethics and Governance Council : how valuable is an "ethics+" approach to governance? / Graeme Laurie -- Orchestrating "the end of the beginning" : a political science perspective on transnational biobank infrastructures in Europe / Georg Lauss
Subjects
- Preservation of organs, tissues, etc. -- Law and legislation -- Congresses.
- Biobanks -- Moral and ethical aspects -- Congresses.
- Donation of organs, tissues, etc. -- Law and legislation -- Congresses.
- Procurement of organs, tissues, etc. -- Law and legislation -- Congresses.
- Biological specimens -- Law and legislation -- Congresses.
- Biobanks -- Government policy -- Congresses.
- Biological Specimen Banks -- ethics -- congresses.
Medical Subject Heading
- Bioethical Issues -- congresses.
Medical Subject Heading
- Biological Specimen Banks -- legislation & jurisprudence -- congresses.
Medical Subject Heading
- Genetic Privacy -- legislation & jurisprudence -- congresses.
Medical Subject Heading
- Health Policy -- congresses.
Medical Subject Heading
- Human Rights -- congresses.
Medical Subject Heading