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Case studies of existing human tissue repositories : "best practices" for a biospecimen resource for the genomic and proteomic era

Publication Details Click to collapse Cite/Export

  • Creator Elisa Eiseman [and others]
  • Format Books
  • Contributors
  • Publication Santa Monica, CA : RAND, [2003] ©2003
  • Series
  • Physical Details
    • 1 online resource (xxxviii, 208 pages) : illustrations, maps
  • ISBNs 0833035932, 9780833035936, 0833035274, 9780833035271
  • OCLC ocm55136006

Summary

  • Case studies of twelve existing human biospecimen repositories performed to evaluate their utility for genomics- and proteomics-based cancer research and to identify?best practices? in collection, processing, annotation, storage, privacy, ethical concerns, informed consent, business plans, operations, intellectual property rights, public relations, marketing, and education that would be useful in designing a national biospecimen network.

Notes

  • "MG-120."
  • Includes bibliographical references (pages 207-208).
  • Electronic reproduction. [S.l.] : HathiTrust Digital Library, 2010.
  • Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002.

Contents

  • Introduction -- Methodology -- Biospecimen Collection, Processing, Annotation, Storage, and Distribution -- Bioinformatics and Data Management -- Consumer/User Needs -- Business Plan and Operations -- Privacy, Ethical Concerns, and Consent Issues -- Intellectual Property and Legal Issues -- Public Relations, Marketing, and Education -- Findings and Summary of Best Practices -- Appendix: Interview Instrument for RAND Evaluation of Existing Tissue Resources
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