Case studies of twelve existing human biospecimen repositories performed to evaluate their utility for genomics- and proteomics-based cancer research and to identify?best practices? in collection, processing, annotation, storage, privacy, ethical concerns, informed consent, business plans, operations, intellectual property rights, public relations, marketing, and education that would be useful in designing a national biospecimen network.
Introduction -- Methodology -- Biospecimen Collection, Processing, Annotation, Storage, and Distribution -- Bioinformatics and Data Management -- Consumer/User Needs -- Business Plan and Operations -- Privacy, Ethical Concerns, and Consent Issues -- Intellectual Property and Legal Issues -- Public Relations, Marketing, and Education -- Findings and Summary of Best Practices -- Appendix: Interview Instrument for RAND Evaluation of Existing Tissue Resources
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